Spina bifida is a neural tube defect that occurs before birth. The most common effects of spina bifida are paralysis, deformities, poor sensation, bladder & bowel incontinence and hydrocephalus.

At least 80% of people with spina bifida have some degree of Hydrocephalus. This condition is due to an accumulation of cerebrospinal fluid within the ventricles of the brain, resulting in raised pressure inside the head. It is treated by inserting a shunt to drain the fluid. Those with spina bifida and hydrocephalus may experience some of the following difficulties: reduced concentration span epilepsy, difficulties with short term or/and working memory, inability to follow multiple instructions and comprehending complex sentence structure, difficulties with reasoning ability and logical thinking.

The IASBAH was established for the care, treatment, education and advancement of those with the condition at local and national level through its services and activities. It provides information, support and advice to people with spina bifida and hydrocephalus, their parents and carers, as well as promoting social inclusion and equality for people with spina bifida and hydrocephalus in Irish society.

Working together with its members, the association is now able to provide a network of services to best meet its member's needs. IASBAH also works in partnership with a network of organsiations to share information and provide its members a range of high-quality support and specialist services.